Raynaud’s Phenomenon Impact on Quotidian Quality of Life

Authors

DOI:

https://doi.org/10.3991/ijoe.v16i09.13993

Keywords:

Design research, Patient Centred Design (PCD), Raynaud’s phenomenon, wellbeing

Abstract


Objective: To gain further understanding into the needs of Raynaud’s phenomenon (RP), patient questionnaires were conducted in England, UK 2017 at an SRUK patient conference and Porto, Portugal 2018 at Central Hospital Universitário Porto (CHUP). The questions focused on daily activities and experience. Method: Sixty-four participants answered questions on their daily experience with RP, specific and general. Analysis grouped results into topics quantified by number and %. Results: Although many tasks trigger RP episodes, some are more problematic than others, e.g. peeling vegetables; for many, the pain (46.9%) is not the worst part, but instead the hinderance in function, inability (73.4%) especially regarding hands and fingers. Conclusion: A Design Specification (DS) criteria for RP patients’ hands is formed through the listed activities. The key needs identified for RP patients fingers and hands are maintenance of: Dexterity, Tactility and Comfort whilst cohering to aesthetic needs & wellbeing.

Author Biographies

Isobel Taylor, Faculdade de Belas Artes da Universidade do Porto

Isobel Taylor – is a PhD student in Design at the Faculty of Fine Arts at the University of Porto (FBAUP) and holds an MRes in Digital Media (2010) from Newcastle University. Multidisciplinary design researcher focused on medical devices, co-founder of SenseIV.

Ivone Silva, Consultant, Centro Hospitalar Universitario do Porto; Associate Professor of ICBAS, University of Porto

Ivone Silva MD – holds a PhD (2015) Raynaud’s phenomenon Risk Factors of Digital Ulcers in Systemic Sclerosis patients from ICBAS University of Porto. She is currently Associate Professor at ICBAS, an Integrated PhD Researcher of the unit for multidisciplinary research in biomedicine, and Vascular Consultant in Centro Hospitalar do Porto.

Susana Barreto, Faculdade de Belas Artes da Universidade do Porto

Susana Barreto - holds a PhD (2008) and PostDoc (2010) from Central Saint Martins and an MA in Information Design (1996) from De Montfort University. A design researcher and educator focusing on the cultural implications of visual communication, visual methodologies and visual ethics, Faculdade de Belas Artes da Universidade do Porto (FBAUP).

César Soares, Faculdade de Engenharia da Universidade do Porto

César Soares - holds a Master Degree in Mechanical Engineering from the Faculdade de Engenharia da Universidade do Porto (FEUP, 2017), specialization in automation. He is currently researcher at FEUP, working in computer design and simulation.

Joaquim Mendes, Faculdade de Engenharia da Universidade do Porto

Joaquim Gabriel received the degree in Mechanical Engineering from the Faculty of Engineering (UPorto, 1988), specialization on machine design; a post-graduation degree in Industrial Automation and Process Management; a Master in Industrial Computing, and a PhD in Industrial Electronics from the University of Minho (2003).He was research fellow of JNICT (National Research Association), with the project "Development of Virtual Instrumentation" (1989) and from the Japanese Ministry of Industry EU-STA at Kanagawa Science Park, Japan (1995-97), with the project "Very High Precise Positioning Using Piezoelectric Actuators". In 2012 he was invited researcher at Yokohama City University, Japan, with the development of software for advanced control of a DNA analysis equipment.Since 2003 is assistant professor of FEUP, integrated in the group of automation, instrumentation and control, teaching in the MSc courses of Management and Industrial Engineering, Mechanical Engineering, Electrical Engineering and Computers, Chemistry, Bioengineering; Abel Salazar Institute of Sciences, and Faculty of Dental Medicine.Joaquim Gabriel is researcher in the FCT Unit - UISPA - Integration Unit Systems and Process Automation integrated in INEGI Research Laboratory - Institute of Science and Innovation in Engineering Integrated Mechanical and Industrial Engineering associated with LAETA - Laboratory for Energy, Transport and Space.Main interests: instrumentation, supervisory control and data acquisition -SCADA, industrial automation, medical devices, thermography.

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Published

2020-08-13

How to Cite

Taylor, I., Silva, I., Barreto, S., Soares, C., & Mendes, J. (2020). Raynaud’s Phenomenon Impact on Quotidian Quality of Life. International Journal of Online and Biomedical Engineering (iJOE), 16(09), pp. 88–104. https://doi.org/10.3991/ijoe.v16i09.13993

Issue

Vol. 16 No. 09 (2020)

Section

Papers